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Disclaimer: The information contained within this website is provided to assist people in understanding the guaifenesin protocol and does not offer medical advice. The UK-FMS-GUAI discussion group is not responsible for any errors, omissions or contents of its items. The contents of this website does not necessarily reflect the views of members of UK-FMS-GUAI.  UK-FMS-GUAI does NOT endorse the advertisements on this website. They have nothing to do with the guaifenesin protocol and some of the products would directly interfere with the treatment. We are powerless to prevent them because Tripod, who provide free webspace, have put them there.

UK Mappers

 

 

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When you are mapped, all the 'lumps and bumps' of fibromyalgia are recorded onto a blank outline of the body. 

Dr St Amand suggests that patients are mapped before starting guaifenesin and then at regular intervals. 

Mapping is important since it is a way of measuring your progress on guai. Also, if your maps start to deteriorate it can be a sign that you are blocking from salicylates.

 

Blank Body Mapping Charts

 

Before you go to be mapped, check that your mapper has a blank body map available. If not then you can print out a copy by visiting this site (from Dr St Amand's website).

Scroll to the bottom of this page to see Dr St Amand's mapping technique.

 

Mappers

(Please note that the mappers listed on this website are not specifically endorsed or recommended by the UK-FMS-GUAI discussion group)

 

Jane Pettifer
80 Ruxley Lane
West Ewell
Epsom
Surrey
KT19 0HY

0208 393 2050

 

Jacqui Grant
The Boughton Physiotherapy Practice
7 Boughton Parade
Loose Road
Maidstone
Kent
ME15 9QD

01622 745038

01622 745038

 

Andrea Barr
Easter Cottage Bishops Bridge
Saxilby Rd
Lincoln
LN1 2BG

01522 521 817

 

Karen Terris
Crouch End
London 
N8

07951 251982

www.karenterris.co.uk

 

John Mullins BSc PhD DO ND MRN MICrA
(Osteopath)
The Centre
33 The Parade
Roath
Cardiff
CF24 3AD

029 2048 2682

j.mullins@cwcom.net 

 

Dr Meng
(Acupuncturist and Chinese Practioner)
City Road
Cardiff

02920 472 900

menggw@yahoo.com

 

Shian Corley
Whole Works
Jackson's Close
209 Royal Mile
Edinburgh
Scotland

0131 225 8092

 

Dr Mark Cashley
Alba Chiropractor Clinic
146 Princes Street
Dundee
DD4 6DG

01382 461081

 

W Harris (acupuncturist)
Weestperzijde 80G
1091 EJ Amsterdam

020 468 52 83

puck@planet.nl

 

Claire Ryall (Chartered Physiotherapist)

Physical Health Dynamics
16 St Cross Court
Kingsgate Rd
Winchester
Hampshire

01962 870568

 

Linda Premadasa (Registered Osteopath)

61 Mill Lane
London
NW6 1NB

020 7431 0220

and also at:

Woodside Osteopathic Clinic
47a Bancraft
Hitchin
Herts

01462 452929

First appointment for new patients 45 minutes (to include full consultation and examination as well as mapping), other consultations 30 minutes. Please say when booking that it is for fibromyalgia mapping.

Annette Brown

Malvern
Worcestershire

01684 566652

 

Katy Whitehouse

Buckfastleigh
Devon

01364 644781

 

Manchester area:

Bill Dove

0161 232 0676 and 07932 044 743

bodymap@metrostress.co.uk

 

Wiltshire area:

Chrissie Burdett

01373 823024

 

Co. Armagh, Northern Ireland:

Phelim O'Neill

02830 868 213

 

More Mappers?

If your mapper would like to contact the group, then please email the internet coordinator with their details.

 

Dr St. Amand's  mapping technique:

A patient's muscles and tendons are palpated to determine which areas are most affected. This is called mapping, which he says is also diagnostic when he finds affected muscles.

Dr. St. Amand maps the entire body  by feeling the lumps and bumps of FMS and drawing them to size on an outline of the body, noting location and degree of hardness. (blank body maps are available here)

Mapping is objective evidence that shows clearing of the affected muscles and tendons, and can detect  blocking by some hidden salicylate.

A videotape is available that demonstrates the mapping technique. These are available at www.fibromyalgiatreatment.com, and help in teaching someone how to map. You can also buy with a credit card from the Marina del Ray pharmacy in the USA. www.fibroconnection.com

NEW 2005! Fiona Russell, administrator for the UK discussion group is now selling protocol DVDs (compatible for UK players) which include the mapping demonstration. Go to homepage for more information.

It is possible to find a chiropractor, massage therapist, or physiotherapist willing to learn. These people already know what normal muscle is supposed to feel like and will not find it hard to learn mapping.

Although you may not be able to do a complete map on yourself, you may be able to do a simplified form by paying careful attention to several areas of your muscles that feel hard and lumpy to you, and follow them over time enabling you to note improvements.

Dr St. Amand has outlined mapping on page 163 What Your Doctor may NOT Tell You About Fibromyalgia.

Lumps can be smooth or cement like, soft or hard. When they begin to purge they contain fluid and feel mushy.

Dr St. Amand maps the round or oval swellings in the trapezii at the top of the shoulders, in the neck when the head is bent forward and in the shoulder blade areas as large rounded, hard beads especially easily when the shoulders are rounded forward.

In the lower back you might be able to feel the bulging spasm of lumbar muscles and the rounded lesions overlying the sacroiliac areas.

The left thigh contains lumps that should clear in the first month of treatment on the correct dose without blocking with salicylates

Tendons: Most often affected are the right lateral shoulder (the deltoid tendon), almost always the front of the right ankle and quite frequently the soles of the feet.

They appear often on the outside of the lower legs, the left more than the right. The inguinal ligaments in the groin are usually swollen for part of their length only, the left more than the right and more often in women than men.

Dr St Amand's experience  the left thigh lumps should disappear in the first month of treatment. The swellings are long  and  linear, running down the outer side as well as the front of the left thigh (outside: vastus lateralis; front: rectus femoris); usually only one lengthy one on the outside (vastus lateralis) and one, two or three large, smooth swellings on the front (rectus femoris).

The one on the outer thigh (vastus lateralis) could be as long as the area between the groin to the knee.

Dr St Amand says that the left thigh will clear in the first month. That does not include the left hip area; which may take a long time. Only the muscle portion counts for the anticipated, early reversal.

Dr St Amand says you will see the left thigh begin to break up within the first month on a therapeutic dose  and be cleared by the end of a month.  Members of Guai-Support have reported otherwise, stating that it often has taken them longer to clear the above muscles in the left thigh. It is very hard to be sure what is happening here given the fact that Dr. St. Amand is not personally mapping them.

If you have already begun the protocol and are concerned about your dose check this area out. Is the lump there? What size is it? Is it broken up into smaller lumps? There are usually exceptions to every rule and a few members have reported that their right thigh was the one to be worse and/or break up first. Or even other areas. This is all so individual.

If you've been on the protocol for some time and still have large, especially longish, lumps running down your left thigh you can at least be sure that you are not clearing and need to raise your dose.

You cannot feel these lumps easily, or maybe at all, while sitting up.

The left thigh remains Dr St. Amand's very best guide as to the onset of reversal.

The long & linear swellings, running down the outer as well as the front of the left thigh (outside: vastus lateralis; front : rectus femoris) are a radar for whether you have reached your therapeutic dose.

Other (smaller) lumps in the thigh will dissolve in time and while they remain they don't indicate anything more than any lump anywhere else on the body. Smallish lumps can arise and dissolve during cycling. Keep focused on the whole body situation. If lumps are diminishing overall each mapping, then all is well.

Here are mapping suggestions from others on the protocol.

International list owner Tesa Marcon suggests:
Lay down on your right side and run your left hand down and up your thigh. You should be able to feel it like that if you press firmly enough  or get a spouse/partner, family member or friend to help you. Once you have established that the thigh lumps are breaking up, or indeed any lumps anywhere on your body, you can be sure you are cycling and don't need to be checking them out all the time but keep a close eye on products you use to be assured that you do not block your medication.

Kathy Jebbia suggests: Sit on the floor with your legs directly under you. In order words, butt to heels & hamstrings to calves. That position makes the thigh really taut instead of mushy so all of the lumps stick out more.

Chris Bialowas suggests: If you can't get into the above position, try laying on your back in bed with your hip and knee bent. This stretches the quads muscle and makes the lumps easy to feel. Use some sal free lotion and run your 2nd, 3rd and 4th fingers down the muscle belly.

Here is the technique used by Dr. St. Amand as explained by Charlotte using her experience of visits to Dr St Amand along with some quotes from his mapping tape

"Dr St Amand says that the "amount of pressure he exerts in looking for bumps and lumps, is about the same amount of pressure in massaging someone you care for."

For Muscles: it is a smoothing action as if you were trying to get the muscle ironed out. Whereas for Tendons and Ligaments it will be a rolling motion as though you were examining a rope and trying to estimate its width.

A. The patient sits at the end of the table and Dr. St. Amand starts mapping.

B. He starts by mapping the TMJ area of the neck and sides. He also feel my cheeks for deposits under the cheekbone. Then he maps the neck and sides and down the entire back to the tailbone area. All the while he is marking the map. He has you round your shoulders and he checks the shoulder area.

C. Now he maps both arms using both of his hands and he feels front and back of the arms all the way down and includes your hands.

D. Then he maps your legs (you are still sitting up at the end of the table).

E. He maps your feet on top, sides and bottom.

F. Now he has you lie down on your back on the table and he examines with a rolling motion the ligaments by the hip bone to the public bone and abdominal muscles.

He sweeps around to the sides to feel both hips and the outer portions. The left one is more involved than the right. He uses more firm pressure than anywhere else to feel the two bundles always on left thigh...the ones that should clear in one month when the proper dosage is attained. The left vastus lateralis and rectus femoris (part of the thigh muscles, the quadriceps). His sketches show these two long, dark areas of spasm. When the left thigh is examined, the vastus lateralis is often described as one of the most tender areas of the body.

He uses a large sweeping motion. He goes down the sides of the legs firmly and on top all the while using both hands.

G. While still lying on your back he examines the back of your thighs; these are the hamstring muscles which are more commonly involved on the right rather than the left.

H. Now he has you roll on your left side with knee slightly bent up and he examines the portion from the hip and butt area down. This area is almost invariably swollen on both sides yet women complain more of pain on the right side. Yet the left side is more commonly involved size wise than on the right side.

I. Now you roll on right side and he examines the sides of the thigh . He examines the particular bundles of the left thigh as these are the ones that clear in one month if you are doing the protocol correctly. He examines you from the hip/butt area all the way down. This is one of the most painful areas.

J. Now the mapping is complete and Dr. St. Amand compares the new map with the previous map. He does not look at the previous map until he has your new map. Then he can compare the two and see if you have made progress, are on your correct dose or are blocking.

Whether you find someone to map you or not it's a  good idea to focus on how you feel and notice all the exacerbations you experience over time.

Keep a note on your calendar or computer, some code you understand, to track your cycles or lack of them. Using numbers to represent pain levels is not the best idea. What is a "four" day now will mean something different as you get better, though some have used this system successfully. Long entries are not necessary.

Then, as you look back you will see if some things have disappeared completely, like a knee that hurt off and on; if you are sleeping better, using fewer pain meds, if you can exercise a bit more.

Then you should see some patterns emerging and  progress over time. You need to feel some improvement to know that you are cycling, even though it might be subtle. If you are unsure then there is no substitute for mapping.

 It is essential to find your correct dose as soon as possible so that you don't end up raising your dose too high and suffering more than is necessary.

Dr. S A maps his patients every three months, and doesn't feel that a 6-week interval is necessarily enough time for differences to be noted in maps. This is particularly true the further along you are in the protocol.

In the first few months, you will typically see dramatic changes in your map because large deposits are being cleared from muscles. As you progress in the treatment, you begin to clear a lot of internal stuff that can't be detected on a map. So you shouldn't be discouraged if your map clearing slows down; realize you are clearing things that can't be palpated.

As long as your maps aren't getting worse (ie, new large deposits), then you needn't worry.

If you still think you are not progressing you could very well be blocking. Check your product's ingredients again. Ensure that one of them hasn't been reformulated to contain salicylates.

Always report a possible blocking situation please so products can be checked. These notifications will also provide the very necessary opportunity for the sal safe products list to be updated for the benefit of everyone.


Website created by Jo Gallagher on behalf of the UK-FMS-GUAI discussion group.
The website is checked periodically to ensure that it is working properly. If you do encounter any difficulties, including broken links, then please email me. Jogallag @ hotmail . com
 
Copyright 2007